Arusa Lakhani1* Debbie Kramer-Roy2, and Tazeen Saeed Ali3
1School of Nursing and Midwifery, Aga Khan University, Pakistan
2Amsterdam University of Applied Sciences, Netherlands
3Associate Professor and Assistant Dean Research, Aga Khan University School of Nursing and Midwifery, Karachi
*Corresponding Author: Arusa Lakhani, School of Nursing and Midwifery, Aga Khan University, Karachi, Pakistan.
Received: August 04, 2020; Published: September , 2020
The COVID-19 pandemic has devastating effects on the lives of the children and their families who have member with an intellectual disability. In such a distressing situation and uncertainties due to the pandemic, the relationships among the family members can become unpleasant, affecting support and cohesiveness within the family, which may have a negative effect on the child. Lack of support and socialization of these families, lead to a stress among them especially for the immediate carers. In a lockdown situation, their routine is disrupted and the parents have to pay extra attention to care for the child. Some of the strategies that are proven to be helpful for the children with an intellectual disability and their families are accessing reliable and trusted information on COVID-19, allowing the child to express his/her feelings by engaging them in different activities, open and supportive interaction among family members, and maintaining the structured daily routine that they followed before the pandemic. The educators/trainers/staffs of the school must remain in touch with the family and inquiring from them “how they are”. Telephonic or video -conferencing counseling and coaching can be offered to the family members and some important tips to overcome the stressors can be discussed. Hence, during lockdown, individualized home programs that can be carried out by family members with the child with an intellectual disability are a good way to ensure the child continues to develop their cognitive, movement, play and self-help skills. Moreover, the government cash transfer assistance should also reach those vulnerable families who have the children with disabilities. It may bring some relief to the families who are struggling to balance their finances to ensure meeting the basic needs.
Keywords: Intellectual Disability; Family Support; COVID-19
Citation: Arusa Lakhani., et al. “Supporting Families having a Child with Intellectual Disability in COVID-19 Pandemic". Acta Scientific Paediatrics 3.10 (2020): 42-46.
Copyright: © 2020 Arusa Lakhani., et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.