Sharing the Truth of Scoliosis Curve Progression Risk with Patients and Families Using a Colorized
Natural History Graph Handout - A Quality Improvement Shared Decision-Making Case Report
from a Pediatric and Adult Scoliosis Clinic
Lloyd A Hey*, Kristina Stanson, Kirsten Darroch and Victoria Dorr
Hey Clinic for Scoliosis and Spine Care, USA
*Corresponding Author: Lloyd A Hey, Hey Clinic for Scoliosis and Spine Care, USA.
June 28, 2022; Published: July 15, 2022
An exhaustive literature review was performed on the natural history of adult progression of scoliosis along with any published
guidelines with the hope of creating better shared decision-making tools for patients and families. A single page colorized handout
based on the best natural history data available was then created and has been used consistently over the last two years with both
pediatric and adult patients and their families with very high satisfaction as a way of directly connecting evidence from the literature
with patient preferences and values in an effort to improve the quality of evidence-based practice (EBP) that respects patient choice.
Keywords: Families; Natural History; Pediatric; Patients
- Buchowski JM. “Adult scoliosis: Etiology and classification” 21.1 (2009): 2-6.
- Wyatt KD., et al. “Shared decision making in pediatrics: A systematic review and meta-analysis”. Academic Pediatrics 6 (2015): 573-583.
- Sackett DL., et al. “Evidence based medicine: What it is and what it isn'tNo title”. BMJ (1996).
- Beaulé PE., et al. “Continuous quality improvement in orthopedic surgery: Changes and implications with health system funding reform”. Canadian Journal of Surgery3 (2016): 149.
- Ascani E., et al. “Natural history of untreated idiopathic scoliosis after skeletal maturity”. Spine (Phila Pa 1976)8 (1986): 784-789.
- Weinstein SL., et al. “Idiopathic scoliosis: Long-term follow-up and prognosis in untreated patients”. The Journal of bone and joint surgery American 5 (1981): 702-712.
- Weinstein SL and Ponseti IV. “Curve progression in idiopathic scoliosis”. The Journal of bone and joint surgery. American 4 (1983): 447-455.
- Weinstein SL. “Adolescent idiopathic scoliosis: Prevalence and natural history”. Instructional Course Lectures 38(1989):115-128.
- Pehrsson K., et al. “Lung function in adult idiopathic scoliosis: A 20 year follow up”. Thorax7 (1991): 474-478.
- Stokes IA., et al. “Biomechanical spinal growth modulation and progressive adolescent scoliosis-a test of the'vicious cycle'pathogenetic hypothesis: Summary of an electronic focus group debate of the IBSE”. Scoliosis1 (2016): 1-21.
- Melnyk BM and Fineout-Overholt E. “Consumer preferences and values as an integral key to evidence-based practice”. Nursing Administration Quarterly 2 (2006): 123-127.
- JONES JW. “Informed consent: Autonomous decision making of the surgical patient”. Surgical Ethics (1998): 15.
- Beauchamp TL and Childress JF. “Principles of biomedical ethics”. Oxford University Press, USA (2001).
- Percival T. “Medical ethics”. Cambridge University Press (1803).
- Ifelayo OI., et al. “Development of a shared decision-making tool for adolescents with scoliosis to decide between observation versus fusion surgery”. Journal of Pediatric Orthopaedics 41 (2021): S70-S74.