Acta Scientific Otolaryngology (ASOL) (ISSN: 2582-5550)

Research Article Volume 3 Issue 10

“Because of Them I will Never Give up”: Perspective of Patients Receiving Specialist Palliative Care in the Kumasi Metropolis, Ghana

Gladys Anyane*, Rasheed Ofosu-Poku, Michael Owusu-Ansah and Alberta Delali Dzaka

Directorate of Family Medicine, Komfo Anokye Teaching Hospital, Kumasi, Ghana

*Corresponding Author: Gladys Anyane*, Directorate of Family Medicine, Komfo Anokye Teaching Hospital, Kumasi, Ghana

Received: September 15, 2021; Published: September 22, 2021

Abstract

  The global need for palliative care continues to grow as a result of the rising burden of non-communicable diseases and an ageing population. Each year, an estimated 40 million people are in need of palliative care. The aim of palliative care is to improve the quality of life of individuals and families who are faced with life-threatening illness, and to offer a support system which helps patients live as actively as possible until death. This study aims at discovering the perspective of patients receiving specialist palliative care at the Komfo Anokye Teaching Hospital. A qualitative approach with exploratory design was employed. Using purposive sampling, ten (10) participants were recruited and individual face-to-face in-depth interviews were conducted. Interviews were audio-recorded, transcribed verbatim, and thematic analysis done. Two (2) themes and seven (7) subthemes were identified. Patients appreciated being respected as individuals and involved in decision making, as well as the receptiveness of team members, their compassion, and the assistance they offered in achieving good symptom control. They also highlighted the cost-effectiveness of palliative care services, its team approach to care, and the home-visit service it offers. All clinicians must therefore integrate the principles of basic palliative care in their daily practice and advocate referral when needs of patients get complex, to improve their quality of life.

Keywords: Perception of Patient; Palliative Care; Communication; Quality of Life; Cancer

References

  1. World Health Organization. “Noncommunicable diseases: Key facts”. World Health Organization (2021).https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseaseson September 14, 2021
  2. World Health Organization. “Palliative Care: Key facts”. World Health Organization (2020). https://www.who.int/newsroom/ fact-sheets/detail/palliative-care
  3. L Ford. “Palliative care unavailable for majority of patients in developing countries”. Guard (2014): 2-4. https://www.theguardian.com/global-development/2014/jan/28/palliativecare-patients-developing-countries
  4. MK Gyakobo., et al. “Developing a Model Palliative Care Korle Bu Palliative Care Team” (2015). https://www.sun.ac.za/english/faculty/healthsciences/Family%20Medicine%20
  5. M Ratel. “Tetteh Quashie Memorial Hospital Palliative Container”. Korle-Bu Neurosceince Found (2017): 1-9. doi:10.1155/2020/8432956.
  6. World Health Organization, “Quality of care: A Process for Making Strategic Choices in Health Systems”. World Health Organization (2006).
  7. S Ospina. “Qualitative Research,” Encyclopedia of Leadership. SAGE Publications (2004).
  8. GD Shank. Qualitative Research: A personal Skills Approach. Prentice Hall (2002).
  9. LM Given. “Lived Experience”. The SAGE Encyclopaedia of Qualitative Research Methods (2008).
  10. EK Masel., et al. “What Makes a Good Palliative Care Physician? A Qualitative Study about the Patient’s Expectations and Needs when Being Admitted to a Palliative Care Unit”. Plos one (2016): 1-10. doi: 10.1371/journal.pone.0158830
  11. C Virdun., et al. “Dying in the hospital setting: A systematic review of quantitative studies identifying the elements of end-of-life care that patients and their families rank as being most important”. Palliative Medicine9 (2015): 774-796.
  12. P May., et al. “Palliative Care Teams’ Cost-Saving Effect is Larger for Cancer Patients with Higher Numbers of Comorbidities,” 35.1 (2016): 44-53. doi: 10.1377/hlthaff.2015.0752
  13. MP Davis., et al. “A review of trials which examine early integration of outpatient and home palliative care for patients with serious illness”. Annals of Palliative Medicine3 (2015). doi: 10.3978/j.issn.2224-5820.2015.04.04
  14. D Kavalieratos., et al. “Association Beween Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis”. JAMA: The Journal of the American Medical Association20 (2016). doi: 10.1001/jama.2016.16840
  15. T Sandsdalen. “Quality in palliative care from the patient perspective Quality in palliative care from the patient perspective,” (2016). https://www.diva-portal.org/smash/get/diva2:1044098/FULLTEXT02.pdf
  16. M Vierhout., et al. “The views of patients with brain cancer about palliative care: a qualitative study”. Current Oncology6 (2017): 1-12.
  17. K Wentlandt., et al. “Quality of Care and Satisfaction With Care on Palliative Care Units”. Journal of Pain and Symptom Management2 (2016): 184-192.
  18. T Sandsdalen., et al. “Patients’ preferences in palliative care: A systematic mixed studies review”. Palliative Medicine (2015): 1-21.
  19. DL Van Alsat. “The Important Thing is...: Patient and family voice in palliative care”. University of Canterbury (2013).
  20. E Mkwinda and E Lekalakala-Mokgele. “Palliative care needs in Malawi: Care received by people living with HIV”. Curationis1 (2016): 1664.
  21. M Heins., et al. “Palliative care for patients with cancer: do patients receive the care they consider important? A survey study” (2018): 1-14.
  22. National Consensus Project for Quality Palliative Care, Clinical Practice Guidelines for Quality Palliative Care, 4th edition”. National Coalition for Hospice and Palliative Care (2018).

Citation

Citation: Gladys Anyane., et al. ““Because of Them I will Never Give up”: Perspective of Patients Receiving Specialist Palliative Care in the Kumasi Metropolis, Ghana".Acta Scientific Otolaryngology 3.10 (2020): 49-55.

Copyright

Copyright: © 2020 Gladys Anyane., et al. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.




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