Mothers’ Struggle and Knowledge Towards Feeding a Child with a Cleft Lip and Palate
Amel Eltayeb1*, Asim Satti2 and Haithem Elhadi Babiker3
11Assistant Professor of Oral and Maxillofacial Surgery, Faculty of Dentistry, Nile University, Sudan
2Assistant Professor of Restorative Dentistry, University of Science and Technology, India
3Associate Professor of Plastic and Reconstructive Surgery, University of Cincinnati, Cincinnati Children's Hospital Medical Center, USA
*Corresponding Author: Amel Eltayeb, Assistant Professor of Oral and Maxillofacial Surgery, Faculty of Dentistry, Nile University, Sudan.
Received: November 19, 2021; Published: December 23, 2021
Abstract
Background and Purpose: The most common problems that cleft lip and/or palate (CLP) patients in Sudan present with are prolonged feeding times and an inadequate nutritional intake. This study was undertaken to investigate Sudanese mothers' knowledge and experiences of having a child born with CLP as well how mothers receive support from professionals.
Methods: A survey of 100 mothers who have a child with CLP was carried out between February and March 2017. These mothers attended a CLP campaign at the Khartoum Teaching Dental Hospital (KTDH) for surgical correction of their child’s cleft deformity. A questionnaire was administered which sought out socio-demographic information, mothers’ knowledge and attitude towards feeding the child, and availability of a specialized feeding bottle.
Results: A total of 100 mothers were included in this study. Half of the mothers (50%) had breastfeeding difficulties at the beginning of the child’s life. A significant correlation was found between the child’s defect and the feeding techniques used by the mothers. None of the cleft palate patients (0%) received breast feeding. Of all mothers, 51% had heard about the special feeding bottle for CLP patients and only 13% from that subset have used it. A significant correlation was also found between mothers’ level of education and their awareness of the existence of a specialized bottle (p-value 0.001).
Conclusion: This study concluded that Sudanese mothers do not receive adequate information from health care providers regarding feeding techniques for their children with CLP. Specialized cleft feeding bottles are not readily available for cleft babies. Health educational campaigns would be beneficial in improving the general understanding of the feeding techniques regarding a patient with CLP.
Keywords: Cleft Lip; Palate; Mother
References
- Bender PL. “Genetics of cleft lip and palate”. Journal of Pediatric Nursing 15 (2000): 242-249.
- Reilly S., et al. “Academy of Breastfeeding Medicine. ABM clinical protocol #18. guidelines for breastfeeding infants with cleft lip, cleft palate, or cleft lip and palate, revised 2013”. Breastfeeding Medicine4 (2013): 349-353.
- Suleiman AM., et al. “Prevalence of cleft lip and palate in a hospital-based population in the Sudan”. International Journal of Paediatric Dentistry3 (2005): 185-189.
- Amaratunga NA. “A study of etiologic factors for cleft lip and plate in Sri Lanka”. Journal of Oral and Maxillofacial Surgery 47 (1989): 7-10.
- Goyal A., et al. “Nature of feeding practices among children with cleft lip and palate”. Journal of Indian Society of Pedodontics and Preventive Dentistry1 (2012): 47-50.
- Reid J. “A review of feeding intervention for infants with cleft palate”. Cleft Palate-Craniofacial Journal 31 (2004): 268-278.
- MJ A. “Feeding therapy and techniques for children with cleft lip/palate”. Carbondale, Illinois. Southern Illinois University Carbondale (2009).
- Peter D Hodgkinson., et al. “Management of children with cleft lip and palate. a review describing the application of multidisciplinary team working in this condition based upon the experiences of a regional cleft lip and palate centre in the United Kingdom”. Fetal and Maternal Medicine Review1 (2005): 1-27.
- Martin V and Bannister P. “Cleft care. a practical guide for health professionals on cleft lip and/or palate”. APS Publishing (2004).
- Ranalli PN MM. “Height weight growth of cleft children birth-6 years”. The Cleft Palate-Craniofacial Journal 12 (1975): 400-404.
- Young J. “What information do parents of new-borns with cleft lip and palate want to know?” Pediatrics 38 (2001): 55-88.
- Blancuzzo M. “Yes, infants with clefts can breast feed”. Awohonn Lifelines 2 (1998): 45-49.
- Agrawal K KP. “A modified surgical schedule for primary management of cleft lip and palate in developing countries”. The Cleft Palate-Craniofacial Journal1 (2011): 1-8.
- Davis MK., et al. “Infant feeding and childhood cancer”. Lancet 8607 (1998): 365-368.
- Aniansson G., et al. “Otitis media and feeding with breast milk of children with cleft palate”. Scandinavian Journal of Plastic and Reconstructive Surgery and Hand Surgery1 (2002): 9-15.
- Gil-da-Silva-Lopes VLD., et al. “Feeding infants with cleft lip and/or palate in Brazil. suggestions to improve health policy and research”. The Cleft Palate-Craniofacial Journal5 (2013): 577-590.
- Ha¨ggkvist AP., et al. “Prevalence of breast-feeding in the Norwegian mother and child cohort study and health service-related correlates of cessation of full breast-feeding”. Public Health Nutrition12 (2010): 2076-2086.
- Arvedson J and Brodsky L. “Feeding with craniofacial anomalies”. Craniofacial Anomalies. An Interdisciplinary Approach 12 (1992): 527-559.
- Svanborg CA., et al. “HAMLET kills tumor cells by an apoptosislike mechanism - cellular, molecular and therapeutic aspects”. Advances in Cancer Research 88 (2003): 1-29.
- Smedegaard L MD., et al. “Hospitalization, breast-milk feeding agiiwcpa”. J clapbiDCP-C 45.6 (2008): 628-632.
- Tungotyo M AD., et al. “The prevalence and factors associated with malnutrition among infants”. BMC Pediatrics1 (2017): 1-7.
- Adegbayi Adeola Adekunle., et al. “Breastfeeding Practices Among Mothers of Children with Orofacial Clefts in an African Cohort”. The Cleft Palate-Craniofacial Journal8 (2020): 1018-1023.
- Cintia Magali da Silva., et al. “Nursing habits in cleft lip and palate children”. RSBO (Online)2 (2012): 151-157.
- SACN Scientific Advisory Committee on Nutrition. Infant Feeding Survey 2005. “A commentary on infant feeding practices in the UK”. The Stationery Office NC (2008).
- Black KA and MA H. “Breastfeeding the high-risk infant. Implications for midwifery management”. Journal of Midwifery and Women’s Health3 (2000): 238-245.
- DF W. “Cleft Lip and Palate. From Origin to Treatment”. New York. Oxford University Press (2002).
- Wallace LM and J K-A. “Training needs survey of midwives, health visitors and voluntary-sector breastfeeding support staff in England”. Maternal and Child Nutrition1 (2007): 25-39.
- Kong SKF and DTF L. “Factors influencing Decision to breastfeed”. Journal of Advanced Nursing4 (2004): 369-379.
- Merten S., et al. “Do baby-friendly hospitals influence breastfeeding duration on a national level?” Pediatrics5 (2005): E702-E705.
- Kroborg H., et al. “Health visitors and breastfeeding support. influence in knowledge and self-efficacy”. European Journal of Public Health3 (2007): 283-288.
- Cleft Lip and Palate. “Association Regionalisation of cleft lip and palate services. Has it worked?” A Report on Users’ Perspectives of Cleft Care (2007).
- Reid J., et al. “Sucking performance of babies with cleft conditions”. Cleft Palate-Craniofacial Journal 44 (2007): 312-320.
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