Acta Scientific Medical Sciences (ASMS)(ISSN: 2582-0931)

Literature Review Volume 4 Issue 12

The Urgent Need to Increase Palliative Care Services for Children with Cancer in the United States

Robert W Buckingham* and Renata Ferretti

The University of Michigan, Ann Arbor, Michigan, USA

*Corresponding Author: Robert W Buckingham, The University of Michigan, Ann Arbor, Michigan, USA.

Received: November 06, 2020; Published: December 08, 2020

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Abstract

Background: The discovery of a fatal disease marks the beginning of the child dying trajectory. However, the lack of availability of palliative care services for children with cancer is a challenge for families in the United States.

Aim: This study is two-fold. The first is to identify the demand for palliative care services for children with cancer. The second is to determine the precise and geographical availability of palliative care services for children in the end-stage disease in the United States.

Design: This study is secondary research.

Data Sources: The research's base is data from organizations as the CDC and NHPCO. The criteria for selecting other studies has focused on research with a confirmed data source that addresses pediatric palliative care services and challenges facing by children with cancer between 1996 to 2020.

Results: In 2016, in the United States, 2118 children aged less than 19 years died from cancer and of this total, 37% died at parent's homes. It appears that the majority of these children were not supported by palliative care service, given that only 3.48% of palliative care services clearly stated that they have a pediatric program, out of a total of 2,330 listed on the NHPCO website.

Conclusion: The number of palliative care services for children should be increased in the United States. Adult's palliative care services could consider training their staff to address the needs of children and families. Governmental Agencies could encourage further research to develop more pediatric programs and services for children who are facing a terminal illness.

Keywords: Child; Neoplasms; Palliative Care; Terminal Care; Home Care Services

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References

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  2. Kaye EC., et al. “Provision of palliative and hospice care to children in the community: A population study of hospice nurses”. Journal of Pain and Symptom Management2 (2019).
  3. Buckingham RW. “The handbook of hospice care”. Prometheus Books (1996).
  4. Bergstraesser E and Flury M. “Care at the end of life for children with cancer”. In J Wolfe, BL Jones, U Kreicbergs and M Jankovic (Eds.), Palliative care in pediatric oncology: A reader (2018): 217-214.
  5. Thienprayoon R., et al. “Hospice care for children with cancer: Where do these children die? Journal of Pediatric Hematology Oncology5 (2015).
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  7. National Vital Statistics Report. Deaths: Leading causes of deaths for 2016, 67(6). M. Heron (Edition.), Division of Vital Statistics (2018).
  8. Lindley L., et al. “Providing hospice care to children and young adults: A descriptive study of end-of-life organizations”. Journal of Hospice and Palliative Nursing6 (2009): 315-323.
  9. Hendricks-Ferguson V. “Physical symptoms of children receiving pediatric hospice care at home during the last week of life”. Oncology Nursing Forum6 (2008): 108-115.
  10. Centers for Disease Control and Prevention - CDC, National Center for Health Statistics. Multiple Cause of Death 1999-2017 on CDC WONDER Online Database. Data are from the Multiple Cause of Death Files, 1999-2017, as compiled from data provided by the 57 vital statistics jurisdictions through the Vital Statistics Cooperative Program (2020).
  11. National Hospice and Palliative Care Organization. - 2. NHPCO’s facts and figures: Pediatric Palliative and Hospice Care in America (2015).
  12. National Hospice and Palliative Care Organization – NHPCO. Find a Care Provider, Filter Provider Type: Hospices (2020).
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Citation

Citation: Robert W Buckingham and Renata Ferretti. “The Urgent Need to Increase Palliative Care Services for Children with Cancer in the United States". Acta Scientific Medical Sciences 5.1 (2021): 17-22.



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